Welcome to UNbreakable Spirit!
Unbreakable Spirit is the best way to describe Jolene, our 2 year old, who was diagnosed with Ostiogenesis Imperfecta (OI), better known as brittle bone disease. Jolene has broken 5 bones in her legs, spent months in casts, and is currently relearning how to walk. Unlike her bones her spirit has never broken.
The doctors at Children's Health were the first to notice that something looked off with Jolene's bones. After several breaks in a short period the Genetics team met with us and did the testing to confirm that Jolene had OI. She then started to see Dr. Seikaly at both Children's and Scottish Rite hospital. She received her first infusion treatment at Children's on Valentine's day and was treated like a princess by their whole staff. Every time we have visited Children's health, for x-rays, bloodwork, appointments, and treatments there staff have been amazing always trying to make Jolene feel as comfortable as possible throughout the process. Their facilities are also filled with toys and playrooms to help keep Jolene occupied and feeling like a normal kid throughout this whole process.
Please consider donating and helping us support Children's so that they can continue to do the amazing work they do not only with Jolene, but with all the Children they treat.
What is Passion for Children's?
Passion for Children's is a grassroots fundraising campaign, designed for people of all ages, for the exclusive benefit of Children's Health.
Everyone may not have the same cause, but Passion for Children's unites fundraisers through hope, courage, vision and determination to make a difference in the lives of children treated at Children's Health.